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Read stories of hope

Charging Forward with CHARGE Syndrome: Liliana’s Story

Liliana was diagnosed after birth with a rare condition that affects about 1 out of every 10,000 live births, with medical complexities mainly affecting her gastrointestinal system and brain. Now 5 years old, she’s making great strides, learning to walk and communicate.

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Saylor’s Medical Journey, as Defined by Shakespeare

Born prematurely at 31 weeks and diagnosed with a rare condition that affects babies’ eating and breathing, Saylor is now on the road to recovery with care from the Esophageal and Airway Treatment team at Johns Hopkins All Children’s.

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Ethan’s Awakening

How Ethan, 13, and his family fought through a frightening COVID-19 experience.

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