Johns Hopkins All Children's Foundation

News

Solving the Medical Riddle

Posted on January 13, 2022
Despite advances in medical science, some children have diseases or disorders that are so rare or confounding that a diagnosis remains elusive. For 8-year-old Evan, specialists at Johns Hopkins All Children’s have made a world of difference for him, his mom says, in managing his symptoms so he can keep doing the things he loves, like play hockey.

A Match for Kids with Cancer

Posted on January 06, 2022
The ICI Social Work Innovation Fund will provide support to families dealing with pediatric cancer so they can focus on what’s most important — their child’s health.

Malani Finds Her Way Home After 400+ Days in NICU

Posted on December 23, 2021
Born prematurely with a condition that severely impacted her ability to breathe, Malani spent more than 400 days in the NICU. Her breathing got a little stronger every day and with the special training her family received to ensure they felt comfortable caring for her at home, Malani is home in time for the holidays.

Healthy and Home for the Holidays: Julia’s Fight Against COVID-19

Posted on December 22, 2021
When Julia was diagnosed with COVID-19, she found the expert care she needed from the physicians, nurses, respiratory therapists and other care providers in the pediatric intensive care unit at Johns Hopkins All Children’s. Now she’s home for the holidays and looking forward to celebrating with her family.

NICU Team Helps Ezra Overcome Challenges

Posted on December 08, 2021
Born prematurely at only 23 weeks gestation, baby Ezra and his family found the expert, compassionate care they needed from the team in the neonatal intensive care unit at Johns Hopkins All Children’s.

Neonatal-Perinatal Fellowship Provides Precious Training

Posted on December 02, 2021
The Neonatal-Perinatal Medicine Fellowship Program at Johns Hopkins All Children’s Hospital trains the next generation of neonatologists — thanks, in part, to the generosity of a couple who knows the hardship of seeing their children struggle with health at the beginning of life.

Novel Stem Cell Transplant Approach Helps Cure Rare Condition

Posted on November 30, 2021
Jocelyn was born with a rare primary immunodeficiency disorder that often meant she couldn’t participate in the same things as other kids her age. But that has changed with a new stem cell transplant approach at Johns Hopkins All Children’s that allowed her brother to be a half-matched donor.

A Heart for Ananya

Posted on October 13, 2021
Six-year-old Ananya arrived at Johns Hopkins All Children’s Hospital on a ventilator. With expert care from the team in the Heart Institute, she left the hospital 76 days later with a new heart, and hugs and smiles for her care team.

Callista In Motion

Posted on September 23, 2021
Baby Callista is on the move — and, to date — there hasn’t been a force mighty enough to stop her, not even cancer.

Brain Tumor Gives Jayden Spice for Life

Posted on September 08, 2021
Jayden was diagnosed with a brain tumor a few years ago after developing a headache that got progressively worse. With support from his family and care from Johns Hopkins All Children’s, the 13-year-old hasn’t let that stop him from becoming an entrepreneur and starting his own business.

Adelaide’s Victory

Posted on September 07, 2021
After suffering from years of debilitating pain, a journey that would ultimately lead her to Johns Hopkins All Children’s Hospital, 13-year-old Adelaide has finally found her footing again.

Sickle Cell Disease Experts Help Siblings Pursue Different Interests

Posted on September 02, 2021
Marcus loves art, film, and math, and his sister Emma loves gymnastics and reading. They both have sickle cell disease, and the care they receive from the Sickle Cell team at Johns Hopkins All Children’s helps them stay healthy as they pursue what they love.

A New Approach

Posted on August 25, 2021
When 11-year-old Timmy had a stroke, doctors said he was at risk of having another. Interventional cardiologist James Thompson, M.D., offered hope in the form of a procedure that made Timmy the youngest person ever to benefit from a new technology.

Charging Forward with CHARGE Syndrome: Liliana’s Story

Posted on July 08, 2021
Liliana was diagnosed after birth with a rare condition that affects about 1 out of every 10,000 live births, with medical complexities mainly affecting her gastrointestinal system and brain. Now 5 years old, she’s making great strides, learning to walk and communicate.

Saylor’s Medical Journey, as Defined by Shakespeare

Posted on July 07, 2021
Born prematurely at 31 weeks and diagnosed with a rare condition that affects babies’ eating and breathing, Saylor is now on the road to recovery with care from the Esophageal and Airway Treatment team at Johns Hopkins All Children’s.

Ethan’s Awakening

Posted on June 18, 2021
How Ethan, 13, and his family fought through a frightening COVID-19 experience.

An Ocean of Love for Maria Mar

Posted on June 10, 2021
Ron and Maria Del Carmen couldn’t have imagined what would be required to keep their daughter alive and safe in her first two years of life — a journey that would lead them from Guatemala to Johns Hopkins All Children’s Hospital.

Heart in the Game

Posted on May 18, 2021
After learning their unborn baby had a heart condition, Bailey and James found the care they needed in the Johns Hopkins All Children’s Heart Institute. Now 10 years later, their son James continues to beat the odds on and off the field.

New Treatment Gives Hope to Children with Peanut Allergy

Posted on May 14, 2021
The first FDA-approved treatment for peanut allergy in children is helping to give kids like Ian and their families peace of mind.

New Event Supports Center for Behavioral Health

Posted on May 07, 2021
Specialized therapies and expert guidance from the Center for Behavioral Health have helped 8-year-old Huntley to thrive. His story was the centerpiece of this year’s virtual A Night for All Children, a new signature event benefiting Johns Hopkins All Children’s.

Fetal Care Program Boosts Baby Cameron

Posted on April 21, 2021
Even before he was born, a neck mass threatened baby Cameron’s life. A skilled team of specialists at Johns Hopkins All Children’s kept him safe.

The Resop Family — A Generation of Service

Posted on April 20, 2021
Inspired by Audrey Resop’s passion for making a difference for the hospital’s patients and families, many in the Resop family have followed in her footsteps. Johns Hopkins All Children’s celebrates Volunteer Appreciation Week April 18-24.

Marina Gives Back through Children’s Miracle Network Hospitals

Posted on April 15, 2021
Marina was born premature and lifeless with her organs outside of her body in a sac. After 10 months in the neonatal intensive care unit, five weeks in a coma, three years on full life support and 25 surgeries, Marina is a healthy and happy 13-year-old who gives back by supporting and volunteering for Children's Miracle Network Hospitals.

A New Addition to the Family

Posted on March 24, 2021
The hospital recently welcomed Brea, the first full-time facility dog to work with the Child Life department. Brea provides comfort, support and serves as a friendly distraction for children during procedures and throughout their hospitalization.

Peace of Mind and Pizza: Food Allergy Clinic Changes Nico’s Life

Posted on March 11, 2021
Four-year-old Nico has completed more than six food challenges with the Food Allergy Clinic to see if and how he reacts to certain foods he might be allergic to. A better understanding of exactly what causes an allergic reaction for kids like Nico makes a big difference for families and children navigating complicated food allergies.

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