Johns Hopkins All Children's Heart Institute

Patient and Family Support

Johns Hopkins All Children’s Heart Institute is dedicated to helping children and families prepare and cope in all stages of treatment.

When your child needs treatment for cardiac issues, the whole family needs support. The team at Johns Hopkins All Children's Hospital is passionate about pediatric patient care that includes the whole family. We help children throughout the world get the attention they need at all stages of their treatment, whether they are preparing for a procedure or recovering from it.

Being There for Your Child

We know that family is the most important source of emotional support and comfort for children. That’s why families are always welcome on the patient care unit and are encouraged to be there with their children. One way we encourage family engagement is by including room for two extra people in our cardiovascular intensive care unit (CVICU). And should you need to step away from the hospital, we ensure parents are always in the know by providing a phone number to speak with your child’s nurse at any time.

Child Life Services

An essential and unique part of our care are the child life specialists who make up part of your child’s multidisciplinary care team. These specialists provide essential psychosocial support to patients and their families. Working as a team, child life specialists, music therapists and academic coordinators apply their expertise in child development, play, stress, coping tools and family support.

Learn more about our Child Life Services

Integrated Care Management

Integrated care management provides a variety of support services to patients and their families while at Johns Hopkins All Children's Hospital. These services include social work services, which helps support families through counseling and resource management; pastoral care, which provides emotional and spiritual support to children and their families; and Team Hope, which is the name of Johns Hopkins All Children’s palliative care program for enhancing a patient’s comfort, dignity and quality of life.

Learn more about Integrated Care Management

Happy Heart Party

In celebration of pediatric heart health, once a year Johns Hopkins All Children's Heart Institute invites patients and families to our Happy Heart Party event. 

Matters of the Heart

Matters of the Heart is an educational symposium for patients and families. Guests will hear from Johns Hopkins All Children's Heart Specialists and patients' experiences.

Organizations & Associations

American Heart Association

Members of the Johns Hopkins All Children’s Heart Institute work closely with the regional chapter of the American Heart Association to broaden understanding of the spectrum of congenital heart disease and promote research efforts for treatment and prevention.
 

Learn more about the American Heart Association

Mended Little Hearts

Mended Little Hearts provides advocates for and supports families and children with congenital heart disease in many ways, including in-hospital peer support programs, educational resources, awareness initiatives, and parent-matching services to help you connect to a community that understands what you’re going through.
 

Learn more about Mended Little Hearts

Boggy Creek Camp

Our organization sponsors and provides volunteers for the Boggy Creek Camp located in Florida. Boggy Creek gives children, ages 7–16 with congenital heart disease, opportunities to enjoy the outdoors and group-centered camp activities in a medically sound and supportive environment. It helps kids and parents bond with others who have gone through or overcome many of the same things.
 

Learn more about Boggy Creek Camp

 

Read inspiring stories about our Heart Institute families:

Pediatric Heart Event Brings a World of Expertise 

Johns Hopkins All Children’s Hospital merges two conferences and capitalizes on the strengths of Continuing Medical Education.

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In The Arena

A baby's first baseball game holds special meaning for his family.

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Home Is Where the Heart Is

A mother, a hospital and a medical foster family help a child recover from a heart transplant and start life with loving support.

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Audrina Thrives After Safer, Less Invasive Option to Open-Heart Surgery

For Audrina, who has successfully survived two open-heart surgeries and multiple cardiac procedures to repair a congenital heart defect, technological advances are a wonderful thing. When she needed another heart procedure to replace her pulmonary valve, Audrina, now 7, benefited from the advancements in patient-centered care in the Johns Hopkins All Children’s Heart Institute, which offers a simpler, safer and less invasive surgery: the Melody valve.

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A Historic Heart Patient Maintains Devotion to Johns Hopkins All Children’s

At just six weeks old, Hunter Ratcliffe made history. Just hours after birth, Hunter’s family learned he was born with a congenital heart defect called hypoplastic left heart syndrome, which meant the left side of Hunter’s heart was missing and couldn’t pump oxygen-rich blood to the body properly. On June 19, 1995, he received the first heart transplant at Johns Hopkins All Children’s Hospital...

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Prepare for your stay by reading our Inpatient Family Guide

 It’s a little easier when you know what to expect and understand what’s going on around you. We hope this guide will be a handy source of information about how our Hospital works. If you have questions or need assistance, don't be afraid to ask. We are here to help.