We provide comprehensive long-term care for patients who have received a heart transplant.
Our heart transplant program has performed more than 185 neonatal and pediatric heart transplants for patients with congenital heart defects or acquired heart disease. We are currently not performing new transplants as we have voluntarily placed our program in inactive status with the United Network for Organ Sharing (UNOS – which manages the nation’s organ transplant system), while we rebuild our heart surgery program. However, we continue to care for patients who have received transplants. These patients continue to receive outpatient and inpatient care, including cardiac catheterization and biopsies.
We offer ongoing patient and family education and support in the post-transplant years, including a patient/family support group. We help our post-transplant patients lead active and fulfilling lives as they prepare for their journey to adulthood. Because we know their unique medical and cardiac history, we continue to provide post-transplant cardiology and adult congenital heart disease services into adulthood.
What to Expect
The transplant coordinators arrange follow-up clinic visits, lab work and biopsies and help with other needs. They help coordinate all of the medications your child will need and help our patients' primary care physicians understand the special health care needs of post-transplant patients to ensure continuity of care.
Our team helps the family and the patient become comfortable and confident with the medications and self-care that are needed after a heart transplant. Outpatient visits at Johns Hopkins All Children’s Hospital take place frequently at first and gradually transition to just a few visits per year. The goal is for our transplant patients to become healthy and independent adults.
Heart transplant patients who are admitted to the hospital receive care in our 22-bed cardiovascular intensive care unit (CVICU). The CVICU has individual patient rooms with sleeping accommodations for two parents. We provide outpatient care in our Transplant Follow-up Clinic in the Outpatient Care Center located across the street from the hospital on the St. Petersburg campus. Between clinic visits, lab testing and other diagnostic tests may be performed at several of our outpatient care locations, including Fort Myers, Lakeland, Pasco (New Port Richey), Sarasota and Tampa.
Patient and Family Support
Learn more about how we work to support your child and family during all stages of your child’s treatment.
Meet Our Team
Meet the heart transplant specialists providing care to our patients.
For more information or to make an appointment, please call us.