What is Craniosynostosis?
When the bones in a baby or child’s skull improperly fuse together, they develop a condition known as craniosynostosis. This premature fusing of bones—through fibrous bands of tissue known as sutures—can cause improper growth of the brain and skull affecting your child’s development. Craniosynostosis occurs in about 1 in 2,200 live births, usually by chance genetic alteration though it sometimes runs in families. At Johns Hopkins All Children’s Hospital, we provide expert care through our team of specialists, including neurosurgeons and plastic surgeons, who develop the best possible treatment plan for your child.
Learn more about craniosynostosis.
Why Choose Johns Hopkins All Children’s Hospital?
You can take comfort in knowing that our team of pediatric specialists is available to answer all your questions, provide exceptional care and support for the entire family. We offer:
- Experienced surgeons. Craniosynostosis is generally treated through surgery, and our team has experience in treating all varieties.
- Minimally invasive surgical option. We are the first in Florida to offer minimally invasive surgical options for children. Each child’s treatment is customized, but if your child is a good candidate for minimally invasive surgery (using small incisions to perform surgery), our team has the knowledge and experience to provide this treatment.
Conditions We Treat
- Sagittal Synostosis (or Scaphocephaly): The most common type of craniosynostosis, resulting in a long and narrow head shape.
- Metopic Synostosis (or Trigonocephaly): Indicated by a pointy appearance of the forehead.
- Coronal Synostosis: May affect one or both sides of the forehead.
- Lambdoid Synostosis: Marked by a flattening of the back of the head with normal appearance of the forehead.
Head Shape Clinic
Patients with craniosynostosis or plagiocephaly (flat heads) may benefit from our Head Shape Clinic. During these outpatient clinic visits, you’ll see a multidisciplinary team of surgeons, physical therapists, and orthotists who specialize in all types of reconstructive and non-surgical techniques. Together you’ll discuss treatment options and any therapies that that may be necessary to help your child succeed.
The Johns Hopkins All Children’s Head Shape Clinic is held regularly at four Outpatient Care locations to improve families’ access to quality care of this common condition:
Ask your child’s care team about the Head Shape Clinic closest to you.
We know you want what's best for your child. We're ready to assist you with your questions.
Request an appointment
Fill out our online form & select "neurosurgery." Our team will contact you shortly.