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Family Involvement

Ways to Get Involved

Here at Johns Hopkins All Children's, we use a shared governance structure for decision-making. This means that hospital leaders, staff, physicians, patients and family members sit together on various councils and committees so that all perspectives can be heard to shape decisions that pertain to patient care and overall patient experience. Many of the decisions that are made relate to promoting quality and patient safety.

Councils meet once a month on the Johns Hopkins All Children's Hospital campus. Meetings are held during weekday business hours.

Advocacy Council

The Advocacy Council works to educate, inform and empower members of the Johns Hopkins All Children's community as well as families, legislators, local and state leaders to focus on the health and well-being of children. Members share their support and provide expertise that can help to improve children's health through disease management, injury prevention, childhood wellness and population health. The Council reaches out to the local, state and federal levels to improve the health of children and families and to ensure the sustained support of hospital programs and services that meet these needs.

Patient Care Services Safety and Quality Council

This council is a multi-disciplinary committee that promotes collaboration with hospital and medical staff leadership to improve clinical practice, safety and quality for patients cared for at Johns Hopkins All Children's Hospital and its outpatient locations. The Council establishes system-wide quality and safety strategy, which encompasses safety, timely, effective, efficient, equitable and patient-centered clinical care and services. The Council evaluates data and trends that reflect quality and safety in the inpatient and ambulatory settings.

The Patient & Family Education Committee

The Patient & Family Education Committee works to support Johns Hopkins All Children's Hospital clinicians in developing and updating materials used to explain a child's diagnosis and treatment, what the patient and family need to do before and after returning home from the hospital, and what types of follow-up care the patient may need. The committee includes bedside and advanced practice nurses, educators, editors and technology specialists who work in consultation with physicians. Having family members serve on this committee will help ensure that education materials are presented as clearly and effectively as possible.

Biorepository Specimen Access Committee

The Johns Hopkins Medicine Pediatric Biorepository at Johns Hopkins All Children's Hospital was established to help advance understanding of pediatric diseases by providing research specimens (typically blood samples) of the highest quality. The committee works to support the research mission of Johns Hopkins All Children's Hospital while preserving patient privacy and confidentiality. The decision to store or use biospecimens is a very important one. The committee considers the value of the potential uses of the specimen, its irreplaceability, and any ethical, legal or scientific challenges that could arise from the proposed research function. Physicians, scientists, biorepository management, Institutional Review Board members, ethics experts and patient/family representatives serve as volunteers on the Committee and provide a diverse perspective.

Family Advisory Council

The Family Advisory Council (FAC) gives parents and teenage patients a voice in helping to promote the practice of family-centered care at Johns Hopkins All Children's Hospital. The Council serves in an advisory role to provide positive and constructive feedback to Johns Hopkins All Children's Hospital leaders. Members also help to highlight ways to support sensitivity to the emotional, cultural and spiritual needs of patients and families. Members serve for a two-year term, and the council meets nine Tuesday evenings per year at Johns Hopkins All Children's Hospital.

Teen Virtual Advisory Council

Some of our teenage patients have valuable feedback to share about the patient experience at Johns Hopkins All Children's Hospital but may not be able to attend Family Advisory Council meetings on a regular basis. The Teen Virtual Advisory Council seeks teen members who can provide input from time to time by answering questions and evaluating materials using email.