Our patients and their families experience many emotions during pediatric oncology and hematology treatments. That’s why we strive to make the journey to wellness as smooth as possible. Whether your child is beginning treatment or years into remission, we have services suited just for them. Our multidisciplinary approach can help kids at all stages prepare for treatment, recovery and their life ahead.
Patient and Family Support from Diagnosis through Survivorship
You can explore the Patient and Family Resources we provide on our website for important information about your stay. Our downloadable Inpatient Family Guide provides valuable practical information on resources, dedicated family spaces, hospital policies and more.
Here are some of the patient and family support services offered through the Johns Hopkins All Children's Pediatric Hematology Program:
Cancer Survivor's Day
Every year, we celebrate the continued survival and recovery of our patients at a special gathering for patients and families. This includes survivors after blood and marrow transplants.
For information about Cancer Survivor's Day 2018 please contact us.
CanSurvive is a cancer survivorship clinic that provides coordinated multidisciplinary survivorship care, including annual visits with doctors (including pediatric oncologists and other pediatric subspecialists), an oncology social worker and other members of Johns Hopkins All Children’s wellness team.
In order to be seen in the CanSurvive Clinic, patients must be in clinical remission at least five years from their most recent cancer diagnosis, and at least two years from completion of their last therapy. Additionally, patients who have undergone bone marrow transplantation for a cancer or noncancerous illness can be seen in our clinic.
See the long-term follow-up guidelines for survivors of childhood, adolescent and young adult cancers. Here you’ll find a set of cancer survivor resources on potential long-term effects and how to deal with them, from emotional issues to reducing the risk of second cancers.
Passport for Care
Johns Hopkins All Children’s encourages survivors to use programs like Passport for Care (PFC) to help them predict likely follow-up and treatment needs in the future. PFC addresses the need to provide patients and survivors of chronic illnesses with increased access to their medical information and health care guidelines. The PFC is an interactive internet resource that provides the user accurate, timely and individualized health care information on a “just-in-time” basis.
HOPE Clinic: Helping Our Patients Excel
Treatment does not stop after successful blood and bone marrow transplants. At Johns Hopkins All Children’s, our HOPE Clinic is dedicated to improving the lives of survivors and their families by coordinating post-treatment care with your primary care physician. We understand that the transplant is only the beginning.
Ronald McDonald House of Tampa Bay
Three separate Ronald McDonald Houses on the Johns Hopkins All Children’s campus are located within easy walking distance of the hospital. Together they comprise the largest Ronald McDonald House serving a single medical facility. Families from outside Pinellas County stay at the Ronald McDonald House during a child’s blood or bone marrow transplant admission. Patients can also stay at the House before and after their transplant admission when frequent outpatient visits may be needed.