At different stages of cancer recovery, your child may require more tests and treatments to ensure their continued health. Johns Hopkins All Children’s Hospital recommends patients use resources like Passport for Care℠ (PFC) in order to get a better idea of what comes next. PFC offers you increased access to your child’s medical information (such as what treatments they’ve already received and when), health care guidelines and suggested follow-up care steps. PFC is an interactive internet cancer survivor resource that provides patients and families accurate, timely and individualized health care information on a “just-in-time” basis.
Who Is Eligible?
PFC was developed for survivors of childhood cancer. It is anticipated that eventually PFC could evolve into Passports that would address the needs of individuals with a wide range of medical conditions.
About the Passport for Care
The PFC is an interactive cancer survivor resource that addresses the need for accurate and timely healthcare information for long-term survivors of childhood cancer. The PFC website has been designed to contain the following elements:
- A Guidelines Generator that dynamically assembles recommendations for care individualized to each survivor according to his or her treatment history. The recommendations, are based on the guidelines recently developed by the Children's Oncology Group.
- An end-of-treatment summary Care Summary, completed by the treating institution and available to the survivor that can be securely shared with providers at the direction of the survivor. This Care Summary is used to generate the individualized recommendations for each survivor.
- Individualized survivor education resources that are customized to the needs of each patient based on their disease and its treatment. These are readily accessible to the survivor and their healthcare provider(s). The information provided helps empower the survivor and is designed to facilitate both survivor and provider follow-up compliance.
- System Security features that ensure privacy and confidentiality.
This project has been furthered through the generous support of:
- Abell-Hanger Foundation
- Joan and Stanford Alexander Foundation
- Lance Armstrong Foundation
- Harry W. Bass Foundation
- Hearst Foundations
- Huffington Foundation
- Meadows Foundation
- Ronald McDonald House Charities of Greater Houston/Galveston
- Ronald McDonald House Charities
- Ronald McDonald House Houston
- Texas Cancer Council
- Private Individuals