Critical Care Patient & Family Support

Johns Hopkins All Children’s Hospital Critical Care has a family-centered approach, involving parents and family as important members of the care team.

Having a child in an intensive care unit is an experience that impacts the whole family. We understand the emotions and difficulty of this experience, and we value your role as part of the care team. Johns Hopkins All Children’s strives to provide resources to help you deal with these issues during your child’s acute illness and manage your child’s recovery, and we involve you in every aspect of the care of your child.

Resources to Guide the Way

Patient and Family Resources provide important information about your stay. Our downloadable Inpatient Family Guide provides valuable practical information on hospital policies, resources, dedicated family spaces and more.

Download Our Inpatient Guide

Access for Parents and Family Members

If you are a parent or guardian of an intensive care patient, you can be with your child any time of the day or night. You will receive a special badge so you can have 24-hour access.

All visitors need to get a daily visitor pass from the Information Desk in the main hospital lobby, or at the Visitors Desk in the Outpatient Care Center (OCC). Visitors to any of our intensive care units will need to complete a short health screening questionnaire, in order to help protect the health of our patients. More information about visiting patients at Johns Hopkins All Children’s Hospital can be found on our Visitor information page.

Breastfeeding Support for NICU Mothers

We have programs in place to help mothers and babies meet the challenges that breastfeeding in the NICU presents. Our Breastfeeding Enrichment Support and Teaching (BEST) team provides education and quality lactation support using the Kangaroo Mother Care Model. Our NICU was the first hospital in America to use the LacTrack Bar-coding system for breast milk and formula-fed babies — a system that improves the safety and handling of breastmilk. We also have a centralized milk drop off and preparation rooms.

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Child Life Specialists 

Our child life specialists are part of your multidisciplinary critical care team. Child life specialists are trained in theories of child development, play, stress and coping, and family systems as they relate to medical treatment. Depending on the case, child life specialists may help children cope with or understand their illness, engage in play or other therapeutic activities, and help develop their role in treatment plans that are age appropriate.

Child life specialists also support families, helping them to cope with the challenges of parenting a critically ill child. They may also work with siblings who may be struggling to understand and cope with a brother or sister’s illness.

According to the American Academy of Pediatrics, offering child life services is a quality benchmark of an integrated child health delivery system, and an indicator of excellence in pediatric care. Child life programs and the kind of services they provide are an essential component of the type of family-centered care provided by the Critical Care Department.

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Ronald McDonald Houses

Ronald McDonald House Charities of Tampa Bay provide a “home-away-from-home” for families that travel a great distance for our critical care facilities and treatments. Three Ronald McDonald Houses serve Johns Hopkins All Children’s Hospital.

A Day Use program is also available that offers snacks, a relaxation area and laundry service from 10 a.m. to 4 p.m. for family members staying bedside. Look for information about the Ronald McDonald House on your unit’s information board or visitor station or call 727-767-7694 to request a room.

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Integrated Care Management

Social, spiritual and emotional support play an important role in family-centered care. Social workers, pastoral care and Team Hope, our palliative care team, are available to help guide you through difficult passages in care.

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Patient Relations Representatives

You can speak to a dedicated Patient Relations representative at any point during your child’s inpatient stay to help you with a number of concerns — whether it is helping you voice your opinion, understand and navigate your child’s treatment or just providing listening and support.

Call 727-767-2110, Monday through Friday from 8 a.m. to 6 p.m., or email us at any time.