Palliative care is a total-care concept for children with complex health care needs. When a child has a life-limiting illness, helping patients and families carry on with everyday life is an important step in the treatment process.
At Johns Hopkins All Children’s Hospital, the palliative care team works across all areas of the hospital, as well as communicating with external groups important to each child’s care, to offer families an extra layer of support.
Our team consists of doctors, nurse practitioners, child life specialists, social workers, therapists, chaplains and counselors. Our goal is to maintain quality of life for the child and family. We also aim to relieve suffering and provide support throughout the course of a child’s illness and treatment.
- Easing pain and other symptoms
- Establishing goals of care
- Health care decision making such as explaining complicated terms and care options
- Emotional support and reducing stress for the whole family
- Communicating with providers to coordinate care
- Sibling support
- Discharge planning and integrating community resources
Our team follows patients over the long-term, providing continuity between services and multiple admissions while addressing all aspects of the family’s needs.
Hospice and Palliative Medicine Pediatrician
At Johns Hopkins All Children’s Hospital, our hospice and palliative medicine pediatricians are specially trained to care for infants, children and adolescents who have life-limiting or life-threatening illnesses. These illnesses include cancer, genetic disorders, premature birth, heart and lung conditions, neurological disorders and more. We aim to offer patients and families the best quality of life by providing patients relief from the symptoms and pain of a serious illness.
Patient families can ask their doctor, nurse or other health care provider if palliative care is right for their family.