Palliative care is a total-care concept for children with complex health care needs. When a child has a life-limiting illness, helping patients and families carry on with everyday life is an important step in the treatment process.
At Johns Hopkins All Children’s Hospital the palliative care team works across all areas of the hospital, as well as communicating with external groups important to each child’s care, to offer families an extra layer of support.
Our team consists of doctors, nurse practitioners, child life specialists, social workers, therapists, chaplains and counselors depending on the child’s needs. The goal is to maintain quality of life for the child and family as well as relieving suffering and providing support throughout the course of a child’s illness and treatment.
The palliative care team can provide assistance with:
- Easing pain and other symptoms
- Establishing goals of care
- Health care decision making such as explaining complicated terms and care options
- Emotional support and reducing stress for the whole family
- Communicating with providers to coordinate care
- Sibling support
- Discharge planning and integrating community resources
Our team follows patients over the long-term, providing continuity between services and multiple admissions while addressing all aspects of the family’s needs.
Patient families can ask their doctor, nurse or other health care provider if palliative care is right for their family.
The palliative care team can be reached by calling (727) 767-4147.